Archive for March, 2009

I Wish I Could Stop Fussing

Saturday, March 28th, 2009

I wish I could stop fussing over my son, but I can’t.  Between the shhhing and the how-are-you-feelings and the can-I-get-you-somethings, I am aware that I am fawning over my only child.  And it isn’t good for him.

It is a lesson that needs frequent reinforcing. During one of his Cub Scout meetings, Connor was etching  leaves with the other children.  When it was time to move on to the next activity, Connor was still working on his etchings,  so I prompted him to put his crayon down.  He did so, but was  clearly mortified that his mother had stepped in to correct him.  I happened to glance up to see the Den Leader’s wife, who was also a parent educator, shake her head sadly.  It wasn’t’ my job to correct my child.  It was the Den Leader’s.  And it probably wasn’t  a big deal anyway if he kept on working.  He was enjoying himself.

My husband and I both work hard to not fuss over Connor.  We sit on our hands to keep from interfering.  Steve, my husband, now goes to Scout meetings because I know I won’t be able to control myself from prompting him. 

And yet, I have my moments where I get it.  I let Connor figure things out on his own, and his pride at his own achievement gives me the courage to let him do more.

autism, parenting, overprotective

Chores… A simple name change and a little collaboration get the job done

Monday, March 23rd, 2009

Figuring that Connor, my seven-year old, was ready for more responsibility, I approached other moms to see what their children were doing in the Chores department. My heart sank to my toes as I realized that once again I was late to the task. Many moms had been watching their children happily scrubbing, dusting, making beds and cleaning bathrooms for years.

Sorting through all of their wonderful suggestions, I settled on having Connor unload the dishwasher, so I asked him if he would put the forks and spoons away. He tried his new chore, and didn’t like the fact the silverware still had drops of water in the basket. Undaunted, I realized that I’d have to bring Connor into the decision process. “We’ll find a new chore that’s just right for you,” I comforted him.

I then talked about the importance of doing chores. Connor responded “I don’t do chores.” I explained that we all have to do chores. It is part of life…Dad does chores, Mom does chores… Connor answered, “Yes, Dad goes to work at the office, you work in your home office and I work at school.” Momentarily distracted, I celebrated his comprehension of the importance of a career. Perhaps he won’t be a professional video gamer after all.

Then it was back to the task at hand. “Honey, we all have jobs to do, but we also have chores to do, too.” Connor thought for a moment and then beamed, “I do chores for my teacher at school.” Good one, sweetheart. I admired his cleverness and marveled at the special talent of teachers to get children to perform tasks that they would otherwise have no interest in doing.

Patiently, I tried again. “Connor, we all like to help out at school and at work, be we also help out at home.”

“No, I don’t want to help out at home. I do homework at home. That is my chore.” Oh boy. Once Connor gets it into his head that he doesn’t like something, it is easier to move a mountain than to change his mind.

Suddenly, I have a brainstorm. “Connor, don’t you remember how you helped gather items for the garage sale?” Yes, he did. “And Connor, don’t you remember how you helped the customers that came to the garage sale?” Yes, he remembered that as well, and beamed, “I did a good job.”

“Yes, you did, honey, and can you now see that chores don’t have to happen all the time, and they don’t have to be difficult, and they can actually be fun?” He nodded, albeit a bit tentatively. And then, using one of the most effective tools in a mom’s arsenal, a simple name change, “Connor, I have a great idea. Your chores are going to be… SPECIAL PROJECTS!”

Special projects? He looked interested (and a bit suspicious), so I charged ahead before he figured out he was being maneuvered. I explained that special projects are important, like helping to wash the car. “Oh I like to wash the car!” This was going great. I had him in my sights. Victory was near.

Trying to appear nonchalant, I said “Maybe laundry would be a special project. You know that mom and dad both help out with laundry.” Connor thought about it for a minute and said, “I’ll throw the clothes in the laundry room.” Now we’re talking. Emboldened, I suggested that “maybe you could do something else with the laundry.” He looked doubtful, so I pushed ahead. “Perhaps you could put the clothes away after they were clean.” Connor looked down his nose. “No, I won’t do that.” Uh oh. A set back. How was I going to handle this one? It turned out that I didn’t have to do anything. A moment later, Connor looked up and said, “But I’ll take the clean clothes and hang them up in the closet.”

Mission accomplished. Perhaps with his gift for negotiation, he’ll be an excellent attorney, possibly one with a specialty in labor relations!

Good Manners: How to Say Hello Back

Friday, March 20th, 2009

Earlier this week I found an article online that provided “Signs that Your Child Might be Spoiled.” One of the signs mentioned was that he or she would fail to respond upon being greeted. When I read this, I shifted uneasily in my chair. Although he handles please and thank you beautifully, my seven year old son Connor will not even talk to his classmates when he is having a bad day. I know this hurts the other children, who go out of their way to make him feel comfortable in his general education classroom.

Later that day, when I picked Connor up from school, I was chatting with another mom. My son walked up to us, and she said, “Hi Connor!” My son promptly turned his back on her. This was the last straw.

Autism is no excuse for rudeness, and I knew we would have to do something to change Connor’s behavior, and pronto. It was also humbling to realize that my husband and I had been overcompensating for Connor’s autism, and we had been unintentionally spoiling him by letting him get away with bad manners. (Ack! These facing-the-music moments in parenting are not pleasant, and I was determined to redeem myself).

At first, I tried talking with him, “Honey, you need to say hello to Mrs. Worth.” He looked hard at me for a moment and then declared, “I don’t say hello to strangers.” I tried a different path. “But, sweetheart, she is my friend, it is okay to say hello.” More firmly now, he responded, “I don’t say hello to your friends.” It was clearly time to change context.

I then asked, “You say hello to your classmates, right?”

“I only say hi to my friends in my classroom.”

For those of you who know how literal a child on the spectrum can be, Connor meant EXACTLY what he was saying. He prefers to talk in the classroom, but not in hallways, and only sometimes on the playground. Oh, this was worse than I thought!

When I got home, I pulled out a training video that had been recently returned to me by our son’s resource teacher. I had given it to her to review, and she had been playing it for all of her students over the past four months. The video series, Model Me Kids, features real children in real settings to teach social skills. I had purchased two of the videos, Time for a Playdate and Time for School as a starter set because Connor LOVED the video clips that Model Me Kids had provided online as a try-before-you-buy strategy. It was a wonderful courtesy, and prevented me from wasting more money on yet another educational tool that Connor would have no interest in watching.

I located the section in the Back to School video about Saying Hello. And then I remembered that when I played the video the first time, that Connor had connected to the characters in the video, but had turned his head away from the saying hello part. Clearly this was something that was difficult for him. Perhaps he was shy; perhaps he saw a greeting as an intrusion into his personal space. Who knows? But it was time to address the problem, and although the videos were able to teach him a number of training skills, this particular task was going to need a bit more oomph.

So I went back to the Model Me Kids website, and found that a teacher and a student training manual were also available as accompaniments to the videos. (Sections of these luckily were also posted online, so I could try them before I decided to order the set, which I did). The training manual included discussion questions, such as “how do you feel when someone says hello to you”? Connor responded “I feel happy!” Then we talked about how he felt when he said hi to someone and they didn’t say hi back. He read the proper response off the manual, “Hurt feelings.” We also went over the student manual, which talked about the rules of saying hello, such as turning to face the person who had issued the greeting, making eye contact and saying hello.

But Connor still looked a little dubious, so we decided to role play. I asked him to pretend he was my friend. I would pretend to Connor. And so we began. He said, “hi!” very brightly and friendly. I, as pretend Connor, walked right past him. He was flummoxed. “Hi!” he said again, and I walked by again without responding. “Hi!”” Hi!” he repeated. And I continued to ignore him. He was looking a little worried by now. After his fourth hi, I turned to him, smiled and said hello with a big smile. Connor got the message.

We watched the Back to school video again, and when it came to the Say Hello part, Connor repeated each instruction.

The next day, Connor began to say hello back.

Safety for Children on the Autism Spectrum

Friday, March 13th, 2009

Keeping children with autism safe is a difficult, but not insurmountable challenge, which is why Autism is Not the Boss is issuing a call to all parents to supply tips and success stories for how to teach safety skills.  As thought starters, please check out our blogs on elopement issues, home safety drills and ’stranger danger.’ 

For more on this topic, please also check out Dennis Debbaudt’s Autism Risk and Safety Management website at http://www.autismriskmanagement.com/. With over ten years of experience presenting autism related law enforcement training sessions, Dennis’s training materials are in use by law enforcement agencies in the U.S., Canada and United Kingdom.

Elopement

My son reacts to certain stimuli like a car alarm in a thunderstorm.  Given the right trigger, he will take off running in full panic mode, usually straight into a busy street, and he will not stop, nor pause, nor look at anything nor at anyone while he is in flight.  The official term for this type of behavior is ‘elopement,’ and it seems to be triggered by some type of sensory overload. It was much worse when Connor was younger, and other than hyper-vigilance on my part, there wasn’t much I could do about it. 

But Connor still runs, and now he’s gotten so fast that it’s difficult to catch him.  After one too many jaunts into traffic, I was determined to do something about it. I grabbed my fleeing son and took him to a running track adjacent to the school, where I told him firmly, “You can run here, but not in the street. Now run! ” And he did, for three laps until whatever was bothering him worked his way out. I ran, too, fueled by adrenaline from my near miss with a semi during the rescue.

We also went over rules.  Connor can’t help his flight response, but he did acknowlege that when I yell  a single “STOP” he’ll do his best to pause until I could reach him.  He also agreed to run toward a playground instead of a street or parking lot. Finally, we are trying to mitigate Connor’s urge to flee by encouraging deep breathing and other self-calming strategies.

 

Stranger Danger

Stranger Danger isn’t an issue for us as my son uses the “Don’t Talk to Strangers” rule completely and without exception!  We’ve had to have a few talks about why it is both appropriate and important to talk to police officers and firemen.

Quiet Advocacy

Wednesday, March 11th, 2009

As parents of children with autism, you are by definition, advocates.  Why not take your advocacy efforts further to help others?  Advocacy efforts don’t  have to be noisy and confrontational.  Communication and relationship-building seem to work much better for me anyhow. 

Schedule a meeting with school administrators to let them know how things are going and to share your ideas – they’ll love to hear from you.  Write a letter to your newspaper talking about what you think should be changed (like removing the R word) or why you think your child’s school district deserves a pat on the back. Schedule a meeting with your local legislators, and let them know how you feel about current policy related to people with autism, or just to tell your story.  You may not get to speak with Senator so-and-so or Governor whosit, but you will most certainly get to speak to someone on staff.  It’s true!  I always thought that I’d have to be a big-time lobbyist to speak with anyone in office, but that simply isn’t the case.  Some lobbyists have already worn out their welcome, so a real constituent is like a breath of fresh air. If you are too shy or too busy to meet in person, send an email or make a phone call.

Most of all, be there for other parents.  You’ve learned a lot, now share it with other parents who are just beginning their journey up Mt. Autism. You can sign up to be a parent mentor through a number of different organizations.  Call your state’s Department of Mental Health or ARC to see how you can help.  Or simply go to your  childrens’ parent-teacher organization meetings.  Supporting your child’s school is  a great way to meet new people and to gently make them aware of the sensitivities related to autism spectrum disorders.

And, if you have something you’d like to say, send your comments my way, and I’ll do my best to post them.

Model Me Kids

Wednesday, March 11th, 2009

Model Me Kids® has broken the code on tools to teach social skills to children who need a boost in this area. The Model Me Kids® DVDs are an excellent resource for children with autism spectrum disorders and other developmental disabilities. The DVDs feature some of the best teachers around — other kiddos. My son enjoys watching them, understands the messaging and has a clear connection with the characters. Our special education caseworker liked them so much that she uses the DVDs in her classroom.

The DVDs can stand alone as a training tool, but I also highly recommend purchasing the student and teacher guides to deliver a comprehensive curriculum. The guides can help facilitate that ‘aha’ moment when your child finally understands. Equally important, the curriculum helps ensure that the child will generalize and be able to apply the learned skill.

Please follow this link to see how we used Model Me Kids® products to train our son to say “Hello” Back.

Valentines, signatures and advice for the pincer-grip challenged

Tuesday, March 3rd, 2009

When it came time to write Valentines in kindergarten, Connor couldn’t write his classmates’ names small enough to fit on those teensie-tiny little cards. For those who are similarly pincer grip and fine-motor challenged, my husband came up with the perfect solution. First, he had Connor write every one of his classmates’ first and last names and his own signature on a single piece of paper. Then, I took the paper of his classmates’ names, scanned it and then resized the image so that it was roughly 1/3 of its original size. I scanned his signature, resized the image and then replicated it 23 times for each Valentine.

Connor then cut out each name and one copy of his signature. Then, he glued it to the Valentines. Unfortunately, Carter was not happy with the result. The glue was messy and the glue stick was ineffective on the slick-faced card stock. Carter came up with the idea to tape the names, which he did with a little help from us.

Mission accomplished. It might sound a bit laborious, but we as a team were able to deliver handwritten, hand-signed Valentines that met his teacher’s (and much more difficult, my son’s) expectations.  The pincer grip came about six months later!

Stuff that works - for us

We  don’t assume these products will work for everyone–that’s why we ended the title with the parenthetical (for us). But if you are looking for new things to try, please read the accompanying blogs to view our experiences with these products. 

 

 

101 Games and Activities for Children with Autism, Asperger’s and Sensory Processing Disorders, by Tara Delaney, M.S. OTR

Written by a pediatric occupational therapist, this book is full of affordable and fun ways to engage your child in educational play.  Click here for our story on how we turned an ordinary family stroll into an exciting adventure!

101activities and games.1

 

Model Me Kids

Model Me Kids® has broken the code on tools to teach social skills to children on the autism spectrum.

Click here for our success story and a full product review.

 

 b-Calm Audio Interventions

The b-Calm System provides audio technology to help calm and increase concentration in children on the autism spectrum.   To learn how we used b-calm, please visit our blog My Son Threw a Shoe in Class Today.

bcalm_badge3

Do You Have a Product?

Do you have a product you’d like us to review for Stuff That Works™? Contact us today.

 

L. Mae Wilkinson:

National Examiner for Autism and Education

National Public Policy Examiner

St. Louis Examiner for Autism and Parenting

Reporter,  Autism Hangout