While I appreciate the reasoning behind PeopleFirst, they may not have considered that many of us consider it to be a part of our very person. To say “I have autism” would be like saying “I have femininity” or “I have homosexuality”. These are inherent traits, not diseases one acquires.

Another blogger suggested the terms “Asperger’s Autism” and “Kanner’s Autism” rather than just lumping it all together. I have to agree. While I certainly don’t mind being called autistic (I’m an Aspie), as my children are certainly autistic too, I can also see the validity of separate terms. They are not “two different things”, but different points on the same continuum.

Sometimes I substitute the word “disorder” for “difference.” (eg: neuro-differences)

As far as the DSM V changes: I am middle of the road right now. I want to take a wait and see approach on this one, because I can see benefits as well as obstacles either way.

I am hoping the generalization of autism does not hinder specific supports from being sought; however, I most individuals diagnosed Asperger’s were denied needed services due to the previous DSM IV classification. I’d like to see if these changes will be beneficial before advocating either way.

I touched on this in my booklet “Same Child, Different Day”, but don’t think have the right/wrong answer.

Thanks for the thought-provoking post.

One thing I thought I’d try when writing is to remove the term ‘disorder’ and just refer to it as an autism spectrum diagnosis and THEN talk about specific delays. I am still working on it, and have decided to put my book on hold until I can edit it with the new nomenclature and have an adult friend with Asperger’s review it. Normally, I don’t like to write by consensus, but this issue is so important to the individuals that we are trying to support.

What do your sons think? They are young men now, and probably have some opinions.
- Mae