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In Memory of Holidays Past…a Message to New “Autism Moms”

Monday, December 14th, 2009

Holidays have always been a time of great joy and great stress.  The joy of having a child experience the wonders of the season; the stress of meeting developmental milestones while battling strep, ear infections, the flu, recurrent meltdowns and night terrors.  Happily, most of Connor’s childhood illnesses have subsided, and so has the race for achieving developmental milestones.  In that spirit, I’d like to provide a holiday message to new ‘autism moms’ (especially those mothers with children under the age of five):

1. Christmas ornaments are educational tools.  At six months of age, my son still wasn’t turning over, so I placed him on his back and held a big shiny ornament about six inches above his face.  Connor has always loved anything that sparkled, and the ornament caught his eye immediately.  Holding the ornament aloft and moving it slowly from one side of his little body to another, he followed it with his eyes.  I took it further to one side until he had to turn his head to see it, and a little further until he turned his body, eventually flipping onto his side and onto his tummy.   Mission accomplished!

Ornaments can also be comforting. One of the most enduring household traditions that we started when Connor was four, was for him to hold an angel ornament while I sang a Christmas carol.  The angel ’sang’ along, which was another form of imaginative play.

2. The night time can be the right time for play.  Gosh, I’ll probably get flammed for saying this, but those late night hours were some of the sweetest, most tender times that my son and I have shared.  There was no one watching  us, no family member judging us, no educator or doctor evaluating us.  Connor and I just played, cuddled, tickled and had fun being ourselves. There were many times when my husband would stagger sleepily down the stairs to see what all the racket was about only to find Connor and I whooping it up under the Christmas tree, wrapped from head to toe  in paper and bows. Of course, we all had to nap the next day, but  with no distractions, Connor and I could work on what I was to learn was the important social skill of joint attention and educational play. 

3. Peace and Patience.  New autism moms might have a difficult time understanding this one.  I sure did.  If one thing doesn’t work, try something else. Or better yet, sometimes patience is the best approach…many a wise mom will say that children will learn a new task at their own pace, in their own time. Keep trying to equip them with the skills that they’ll need to become independent adults some day… and above all, tell your children how much you love them and accept them for the precious gifts that they are.

Happy holidays!!

The Value of a Parent Mentoring Chain

Friday, September 4th, 2009

Okay, I admit it.  My normally sunny, positive disposition occasionally suffers (spirals?) into an abyss of self-doubt, despair and worry.  When I get that way,  I have a gift I can rely on time and time again… I’ve learned the value of a parent mentoring chain. (more…)

Family Fun Away from Home

Sunday, June 28th, 2009

It was a nightmare taking Connor anywhere.  When he was an infant, we’d cover his pumpkin seat with a light blanket, much like a canary in a cage, as a barrier to sensory overload whenever we visited Wal-Mart or the grocery store. As a toddler and through pre-school, Connor would often refuse to get out of the car when we went to the zoo or to a children’s museum.  And movies…Connor couldn’t sit through previews until he was five!  So much money and time were wasted, and yet…he took his first plane ride when he was only three and half years old. The only thing we can advise is to keep trying!  Here are a few things that have worked to get us out of the house (and away from the Wii):

1. Family bike rides.  If a child hasn’t yet learned how to ride a bicycle, try renting a tandem attachment.  The tandem contains a third wheel that attaches to the back of an adult bike. Handlebars and pedals provide stability.

2. Movies.  Request your local theater to host a sensory-friendly screening one day per month.  Ask the theater to provide up-lighting, minimal or no previews and lower sound volume. When the child gets better acclimated to the theater environment, let him or her bring a friend. 

3. Travel. Prepare for the trip with an online preview of the sights he or she will see while on the trip.  Also provide a visual schedule of the transitions, such as driving to the airport, riding the shuttle to the terminal, passing  through security, boarding the plane, getting a  rental car and driving to the hotel. Bring a portable DVD player for plane and road trips. If traveling for  more than one day, take it easy by staying in and ordering room service the first night.

4. Nature hikes.  Look for good weather – not overly hot, humid or cold.  Think up educational ideas, such as finding fossils or devising a treasure hunt for colorful and/or textured items.

5. Field Trips. Visit a non-children’s museum on a weekday when there are fewer crowds. Art, science, history and  technology museums provide fun and/or beautiful things to view without all of the overly-bright and distracting gizmos found in the children’s wings. 

6. Swim, but at a private pool, not a crowded, kid-filled one.  Some hotels offer day rates to use their indoor pool facilities in the fall and winter.

Engaging Your Spouse

Friday, May 29th, 2009

He kisses her on the cheek, slings his golf bag over his shoulder and heads out the door with a breezy,”Don’t worry, honey, he’ll grow out of this autism-thing on his own.”  In the meantime, she keeps a rigid schedule of appointments for every autism therapy – traditional, biomedical, experimental or pure black magic – she can find.    He listens to his mother.  She listens to whomever will take her call. What little time they have together is spent arguing about who is right and who is wrong.  ’Quality couple time’  turns into an opportunity to fight without the children overhearing. Marriage is difficult enough, but autism can make it even more so. 

 One way to help neutralize autism’s effect on a marriage is to engage your spouse in creating an aligned viewpoint.  Alignment is simply another often-used corporate term that means getting on the same page.  To start building alignment with your spouse, start with a fresh sheet of paper and answer these three questions: (more…)

Stuff that works - for us

We  don’t assume these products will work for everyone–that’s why we ended the title with the parenthetical (for us). But if you are looking for new things to try, please read the accompanying blogs to view our experiences with these products. 

 

 

101 Games and Activities for Children with Autism, Asperger’s and Sensory Processing Disorders, by Tara Delaney, M.S. OTR

Written by a pediatric occupational therapist, this book is full of affordable and fun ways to engage your child in educational play.  Click here for our story on how we turned an ordinary family stroll into an exciting adventure!

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Model Me Kids

Model Me Kids® has broken the code on tools to teach social skills to children on the autism spectrum.

Click here for our success story and a full product review.

 

 b-Calm Audio Interventions

The b-Calm System provides audio technology to help calm and increase concentration in children on the autism spectrum.   To learn how we used b-calm, please visit our blog My Son Threw a Shoe in Class Today.

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Do You Have a Product?

Do you have a product you’d like us to review for Stuff That Works™? Contact us today.

 

L. Mae Wilkinson:

National Examiner for Autism and Education

National Public Policy Examiner

St. Louis Examiner for Autism and Parenting

Reporter,  Autism Hangout