Posts Tagged ‘autism parenting’

New Year’s Resolutions for an ‘Autism Mom’

Thursday, December 31st, 2009

Autism and life are inextricable,  but certainly not incompatible nor joyless.  Sometimes, though, thriving with autism might take a bit more planning and commitment. Thus, with high hopes and good intentions, I join with many others in making my 2010 New Year’s resolutions. Here are mine, which have been tailored to an autism-friendly mode:

1. To stop dithering about my son’s educational placement, and get him where he needs and wants to be.  It all started with Connor’s statement, ”There are too many students and staff at my school.  I can’t concentrate.” All the sleepless nights, hand-wringing and relationship-cultivating efforts with the special education staff won’t change the fact that his current services and placement are not working as well as they could be. Dithering about the advantages and disadvantages of home school, private school or switching to a new public school is not helpful.  It’s time to get out those scorecards, interview guides, site tours and other due diligence methods that I used for years in the business world to discover what alternatives are out there, and how they may fit with Connor’s needs.  Surely there is some solution that incorporates inclusion, academic achievement, services  and a strength-based/individualized curriculum in an environment that my son will enjoy. (By the way, he’ll be in on the decision-making, too, along with our banker!)  Estimated completion date: June 1.

2. To talk less. This is a difficult thing to do.  I love words.  I love how words combine into phrases and phrases into sentences and sentences into paragraphs.  I even like to say the same thing twice, but in different ways.  Unfortunately, Connor doesn’t understand long monologues, and has even said “Mom, you talk too much.”  I’m sure my spouse would agree.  Estimated completion date: about 25 years from now.

3. To develop a passion for fresh fruit and lap swimming.  I thought these were more specific than “to adopt a healthier lifestyle.” The cholesterol-monster is already at work in my body, so diet and exercise are important for me, and fruit 3x per day and swimming 3x per week should be relatively easy to pull off. Besides, both can help my skin maintain a youthful glow, which at my age is much needed. Estimated completion date: ongoing, with constant vigilance and persistence.

4. To be willing to share what I’ve learned  and to keep learning. Mentoring and advocacy are critically important.  Moms and dads with autistic kids have a tank full of collective knowledge, and that knowledge is not siloed, even though the autism community that serves us is highly specialized.  In other words, we know how speech, OT, PT, APE, ABA, vision, music, art and other therapies fit into IEP goals. We know how concomitant medical issues may require the services of  a bunch of experts–an allergist, an  immunologist, a nutritionist, a gastroenterologist, an ear-nose-and-throat specialist, a sleep therapist, a pediatrician, a pharmacist, a psychologist, a neurologist, an attorney or even a social worker.  We’re pretty smart people, and I, for one, am glad to be part of such a group. Estimated completion date: always to be accessible for sharing; never to be finished with learning.

Happy New Year to you all!

Snappy Comebacks to “Why Can’t You Control Your [Screaming] Child?”

Sunday, August 23rd, 2009

 It really doesn’t help when strangers deliver stinging comments like “Can’t you control your child?” or “Can’t you hear your child screaming?” while you are otherwise engaged in simultaneously 1) figuring out what’s causing him to scream/misbehave 2) avoiding injury to yourself, the environment and your offspring and 3) trying to calm down the noisy little one. One way I’ve found to nip the comments of others in the bud is to develop a short-list of ready-made responses. 

Snappy Comebacks to “Can’t you hear (control) your screaming child?”  

1. “My child is on the autism spectrum. It is a complicated disease, and my son cannot help the way he is acting.” Mature and sensible, this approach works when you have a few minutes to spare for follow-up dialogue, which means you will rarely ever use it. Please see below for alternatives.

2. “I’m deaf.” My friend Ashley uses this one all the time to cut off these rude strangers at the pass. I never had the courage to use it.

3.“There are forces in play here that you cannot possibly understand.” I have been dying to try this one accompanied by a sinister waggling of my eyebrows, but haven’t been daring enough to do so.

4.   “Sorry, I can’t talk now; my child is having a meltdown.” Brief and to the point, yet polite. It is a favorite among all of the moms we’ve talked to.

5-6. “He’s really hungry.” Wimpy, but it works. The only problem is that you have to somehow scoop the child up and take him somewhere where there is presumably food. In essence, you are cutting short your activity and making up excuses to accommodate the judgment of others. Alternatives such as, “she’s really tired” also work well, but are equally cowardly. I used these frequently before receiving Connor’s diagnosis. I have become much more assertive since then.

7. Yes, but I choose not to. I’m letting him work it out on his own. Thank you for thinking of us, and I apologize for disturbing you.” A polite way of saying mind-your-own-business, but also verifying that you have a reason for what you’re doing. It also protects the child by not using autism as an excuse, if you have not yet told your child about his autism diagnosis.

8. If I have the time, I try patiently to explain, but the problem with this  approach is that I won’t be heard over the din of screaming and flying objects, even if I am prepared to be pithy. The Autism Speaks Organization has a button that you can order online to say, “I’m Not Misbehaving. I have Autism,” but I have a hard time asking my son to wear one all the time, especially since his meltdowns are now few and far between, and I know that he values his privacy.

9. Ignore them.This takes more self-discipline than I have.

10. And finally, I try to remember that many people still just don’t understand autism. I try not to be too hard on them.


Leveraging Your Spouse’s Strengths…and Weaknesses

Monday, August 10th, 2009

Little did I know that the things that drive me crazy about my spouse (and vice versa) would turn out to be terrific assets for parenting a child with autism. My husband and I have found we can actually divide and conquer parenting responsibilities based upon our own less-than-stellar abilities.  Try it!

1. Who is the most laid-back? In our case, my husband has a live-and-let-live attitude. A perfect job for him is to work on social facilitation during our son’s group outings (like cub scouts). Whereas I tend to hover, my dear husband is able to step in at just the right time. He also gets along fabulously with the other dads.

2. Who is the most uptight? That would me. And that’s okay, because I can redirect that energy elsewhere. I am a meticulous researcher and form filler-outer; both important skills when raising a child with autism.
           
3. Who is the worst student? It’s a tie! My husband detests reading anything except the sports pages, but he seems to know how to get our son to practice reading by making it fun. On the other hand, I made it through high school geometry by the skin of my teeth, so I wind up on  math homework duty by drawing picture-based math problems.
             
4. Who is the worst athlete? Me again. Steve may be able to hit a golf ball 300 yards, but he is a lousy coach because his body does naturally what the rest of us have to practice at the gym for years. I, on the other hand, drop the ball as often as my son does, so I’m very non-threatening to our little guy, who knows that he can beat me after a few tries at a new physical skill.  I’m also a leftie, like my son, we we tend to do everything backwards and upside down!

Traits to Cultivate in Children with Autism

Thursday, June 18th, 2009

traits-finalWhat can parents do to help their children achieve success in a neurotypical world?  I asked  parents wherever I could find them – in development center waiting rooms, at school events and on social networking sites – about what they considered to be the most important traits to cultivate in children with autism spectrum disorders.  And I’ve  heard wonderful stories!  Young adults with autism are completing advanced placement courses in high school, are attending college and/or  are contributing to their communities by participating in theater, art, music, charities, politics and sports.  One mom says that her son’s former areas of weakness – language and social skills- have become his biggest strengths.    

Children with autism spectrum disorders are thriving.  I know there is still a long way to go for many of our children, but it appears that the tide is turning.  What are parents doing to help their children to grow up to be successful adults? (more…)

Stuff that works - for us

We  don’t assume these products will work for everyone–that’s why we ended the title with the parenthetical (for us). But if you are looking for new things to try, please read the accompanying blogs to view our experiences with these products. 

 

 

101 Games and Activities for Children with Autism, Asperger’s and Sensory Processing Disorders, by Tara Delaney, M.S. OTR

Written by a pediatric occupational therapist, this book is full of affordable and fun ways to engage your child in educational play.  Click here for our story on how we turned an ordinary family stroll into an exciting adventure!

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Model Me Kids

Model Me Kids® has broken the code on tools to teach social skills to children on the autism spectrum.

Click here for our success story and a full product review.

 

 b-Calm Audio Interventions

The b-Calm System provides audio technology to help calm and increase concentration in children on the autism spectrum.   To learn how we used b-calm, please visit our blog My Son Threw a Shoe in Class Today.

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Do You Have a Product?

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L. Mae Wilkinson:

National Examiner for Autism and Education

National Public Policy Examiner

St. Louis Examiner for Autism and Parenting

Reporter,  Autism Hangout