Posts Tagged ‘parenting’

Autism Ups and Downs: When Parents Lose Their Way

Monday, September 20th, 2010

Losing our way as parents happens.  Typically, it begins with the nagging doubt  that we aren’t doing something quite right, but we cannot  for the life of us figure out what it is. Sometimes the realization is a false alarm generated by other stressors in our lives.  Other times, the doubt is based in reality, but the underlying issue is easily identified and corrected by advice from other parents,  professionals or the ever-helpful Google search engine.

But other times, we parents do come to a point where we don’t know what to do, and all of the advice, research and theory just won’t cut it.   We need hands-on training.

That’s where Steve and I are now, and that’s when I know it’s time to call in the in-home parent trainer.

I do not like in-home parent trainers. I don’t dislike them; they just scare me with their common sense and practicality.  In fact, it’s always been my experience that our parent training is similar to the “Nanny” TV shows (except there aren’t any cameras, thank goodness). In those programs, the trainer patiently and quietly observes the family as they go through their day-today routines. The trainer then comes back  to reveal parenting errors that were obvious to everyone watching, except the oblivious parents. 

We know, we’ve been clueless parents, too.  Some suggestions that we’ve fielded from our trainers are:  ”Connor might walk better if you’d let his feet hit the ground once in awhile.” (We were carrying him too much) or “So what do you think he’s feeling right now?” (Reinforcing the idea that Connor has the right to provide input into his own care and treatment options).

So as painful as it can be, in-home parent education is well worth the time, trouble and less-than-flattering view of ourselves as parents.  But I dread it, even as nice as the trainers are, and even though the cost is covered by the State.

But wouldn’t it be even nicer if we had access to parent training on a continuous basis?  I, for one, believe that the Parents as Teachers/First Steps parent education we enjoyed when Connor was an infant should extend through at least middle school.    In Missouri, the Parents as Teachers training program ends when the child begins pre-school.  The trainers, usually ex-teachers who prefer to work part-time, show up at the parent’s doorstep every month or so to check on the child’s  progress and to give parents useful and fun activities to assist his/her development. Now that Connor is 9, and is officially in the ‘tween’ stage, we could use that help now.

New Year’s Resolutions for an ‘Autism Mom’

Thursday, December 31st, 2009

Autism and life are inextricable,  but certainly not incompatible nor joyless.  Sometimes, though, thriving with autism might take a bit more planning and commitment. Thus, with high hopes and good intentions, I join with many others in making my 2010 New Year’s resolutions. Here are mine, which have been tailored to an autism-friendly mode:

1. To stop dithering about my son’s educational placement, and get him where he needs and wants to be.  It all started with Connor’s statement, ”There are too many students and staff at my school.  I can’t concentrate.” All the sleepless nights, hand-wringing and relationship-cultivating efforts with the special education staff won’t change the fact that his current services and placement are not working as well as they could be. Dithering about the advantages and disadvantages of home school, private school or switching to a new public school is not helpful.  It’s time to get out those scorecards, interview guides, site tours and other due diligence methods that I used for years in the business world to discover what alternatives are out there, and how they may fit with Connor’s needs.  Surely there is some solution that incorporates inclusion, academic achievement, services  and a strength-based/individualized curriculum in an environment that my son will enjoy. (By the way, he’ll be in on the decision-making, too, along with our banker!)  Estimated completion date: June 1.

2. To talk less. This is a difficult thing to do.  I love words.  I love how words combine into phrases and phrases into sentences and sentences into paragraphs.  I even like to say the same thing twice, but in different ways.  Unfortunately, Connor doesn’t understand long monologues, and has even said “Mom, you talk too much.”  I’m sure my spouse would agree.  Estimated completion date: about 25 years from now.

3. To develop a passion for fresh fruit and lap swimming.  I thought these were more specific than “to adopt a healthier lifestyle.” The cholesterol-monster is already at work in my body, so diet and exercise are important for me, and fruit 3x per day and swimming 3x per week should be relatively easy to pull off. Besides, both can help my skin maintain a youthful glow, which at my age is much needed. Estimated completion date: ongoing, with constant vigilance and persistence.

4. To be willing to share what I’ve learned  and to keep learning. Mentoring and advocacy are critically important.  Moms and dads with autistic kids have a tank full of collective knowledge, and that knowledge is not siloed, even though the autism community that serves us is highly specialized.  In other words, we know how speech, OT, PT, APE, ABA, vision, music, art and other therapies fit into IEP goals. We know how concomitant medical issues may require the services of  a bunch of experts–an allergist, an  immunologist, a nutritionist, a gastroenterologist, an ear-nose-and-throat specialist, a sleep therapist, a pediatrician, a pharmacist, a psychologist, a neurologist, an attorney or even a social worker.  We’re pretty smart people, and I, for one, am glad to be part of such a group. Estimated completion date: always to be accessible for sharing; never to be finished with learning.

Happy New Year to you all!

Can Homework be Fun????!!!…

Monday, April 13th, 2009

Yes it can.  It takes a bit of disguise and derring-do, but homework can be great fun for the entire family.  How do I know? Pure panic and desperation.

All parents know that homework isn’t about learning academics, it’s about learning how to be a grown up.   It’s about following through and fulfilling a commitment.  And, oh what a tough lesson it is, especially when the commitment deadline falls on a beautiful day or a shoe sale.

If you’ve tried everything that the experts have told you to do regarding good homework practices – like making sure your child has enough rest, a set time for homework, a set place for homework, no known other learning disabilities, good lighting, a full tummy– and none of it seems to be working, then here are a few desperation-generated alternatives:

1. Powerful incentives. This one never fails…Absolutely no Wii until at least one page of homework is finished, and then and only then can the reluctant student play all 32 time trial races.

2. Creative competition. An irresistible challenge does wonders.  Try this on your homework-avoidant offspring: “Sweetie, can you finish your math facts before Mom finishes packing your lunch?”   (For this  to work, make sure your child always wins, even if it takes you an hour and a half to make a sandwich).

3. Spelling word Pictionary.  After his turn to draw on our whiteboard, my son always blurts out the answer before anyone has a chance to guess.  This can work in your favor…make up a rule so that whoever answers first has to spell the word!

4. Taking turns being the teacher.  It is quite comical to see how a child interprets his teacher’s mannerisms. Through Connor’s outstanding mimicry, we discovered what a kind and loving teacher he has this year, and what a wonderfully stern taskmaster she can be when children misbehave.  You go, Mrs. C!

5. Think yucky.  Anything that eats its young,  drops its tail and excretes poison through scaly and/or slimy skin is an irresistible come-on to a reading-averse youngster. Make sure you have lots of books about reptiles and amphibians to help meet those 1/2 an hour per day reading requirements.

6. Be relevant.  Keep in mind that an assignment that involves writing a paragraph or a story can be about ANYTHING.  A favorite movie, a video game or an unusual episode, such as the curious incident of how our dog ate her own yurp (see #5 above) all work just fine. Just get the darn thing written.

7. Go on Vacation.  Why homework is fun on vacation but not at home eludes me, but my son loves to do homework on an airplane.  Hurray for fare wars!

….And if all else fails, put the responsibility back on his or her shoulders.  One afternoon, I threw up my hands, and said, “Son, I’ve tried everything I know to get you to do your homework.  If you don’t want to do it, I can’t make you. The consequences are in your hands now — it is up to you and only you if you want to move up to third grade, or to behave like a big boy or to help the teachers who have been trying to help you.”  Then, I cried (but I didn’t want to lay a guilt trip on him, so I did my sniffling in another room).  After about five minutes, he came to the kitchen table, sat down and began to complete his homework. I can’t say that this works every time – it doesn’t – but it gave me a glimpse of the man my son will grow up to be.

I Wish I Could Stop Fussing

Saturday, March 28th, 2009

I wish I could stop fussing over my son, but I can’t.  Between the shhhing and the how-are-you-feelings and the can-I-get-you-somethings, I am aware that I am fawning over my only child.  And it isn’t good for him.

It is a lesson that needs frequent reinforcing. During one of his Cub Scout meetings, Connor was etching  leaves with the other children.  When it was time to move on to the next activity, Connor was still working on his etchings,  so I prompted him to put his crayon down.  He did so, but was  clearly mortified that his mother had stepped in to correct him.  I happened to glance up to see the Den Leader’s wife, who was also a parent educator, shake her head sadly.  It wasn’t’ my job to correct my child.  It was the Den Leader’s.  And it probably wasn’t  a big deal anyway if he kept on working.  He was enjoying himself.

My husband and I both work hard to not fuss over Connor.  We sit on our hands to keep from interfering.  Steve, my husband, now goes to Scout meetings because I know I won’t be able to control myself from prompting him. 

And yet, I have my moments where I get it.  I let Connor figure things out on his own, and his pride at his own achievement gives me the courage to let him do more.

autism, parenting, overprotective

Chores… A simple name change and a little collaboration get the job done

Monday, March 23rd, 2009

Figuring that Connor, my seven-year old, was ready for more responsibility, I approached other moms to see what their children were doing in the Chores department. My heart sank to my toes as I realized that once again I was late to the task. Many moms had been watching their children happily scrubbing, dusting, making beds and cleaning bathrooms for years.

Sorting through all of their wonderful suggestions, I settled on having Connor unload the dishwasher, so I asked him if he would put the forks and spoons away. He tried his new chore, and didn’t like the fact the silverware still had drops of water in the basket. Undaunted, I realized that I’d have to bring Connor into the decision process. “We’ll find a new chore that’s just right for you,” I comforted him.

I then talked about the importance of doing chores. Connor responded “I don’t do chores.” I explained that we all have to do chores. It is part of life…Dad does chores, Mom does chores… Connor answered, “Yes, Dad goes to work at the office, you work in your home office and I work at school.” Momentarily distracted, I celebrated his comprehension of the importance of a career. Perhaps he won’t be a professional video gamer after all.

Then it was back to the task at hand. “Honey, we all have jobs to do, but we also have chores to do, too.” Connor thought for a moment and then beamed, “I do chores for my teacher at school.” Good one, sweetheart. I admired his cleverness and marveled at the special talent of teachers to get children to perform tasks that they would otherwise have no interest in doing.

Patiently, I tried again. “Connor, we all like to help out at school and at work, be we also help out at home.”

“No, I don’t want to help out at home. I do homework at home. That is my chore.” Oh boy. Once Connor gets it into his head that he doesn’t like something, it is easier to move a mountain than to change his mind.

Suddenly, I have a brainstorm. “Connor, don’t you remember how you helped gather items for the garage sale?” Yes, he did. “And Connor, don’t you remember how you helped the customers that came to the garage sale?” Yes, he remembered that as well, and beamed, “I did a good job.”

“Yes, you did, honey, and can you now see that chores don’t have to happen all the time, and they don’t have to be difficult, and they can actually be fun?” He nodded, albeit a bit tentatively. And then, using one of the most effective tools in a mom’s arsenal, a simple name change, “Connor, I have a great idea. Your chores are going to be… SPECIAL PROJECTS!”

Special projects? He looked interested (and a bit suspicious), so I charged ahead before he figured out he was being maneuvered. I explained that special projects are important, like helping to wash the car. “Oh I like to wash the car!” This was going great. I had him in my sights. Victory was near.

Trying to appear nonchalant, I said “Maybe laundry would be a special project. You know that mom and dad both help out with laundry.” Connor thought about it for a minute and said, “I’ll throw the clothes in the laundry room.” Now we’re talking. Emboldened, I suggested that “maybe you could do something else with the laundry.” He looked doubtful, so I pushed ahead. “Perhaps you could put the clothes away after they were clean.” Connor looked down his nose. “No, I won’t do that.” Uh oh. A set back. How was I going to handle this one? It turned out that I didn’t have to do anything. A moment later, Connor looked up and said, “But I’ll take the clean clothes and hang them up in the closet.”

Mission accomplished. Perhaps with his gift for negotiation, he’ll be an excellent attorney, possibly one with a specialty in labor relations!

Good Manners: How to Say Hello Back

Friday, March 20th, 2009

Earlier this week I found an article online that provided “Signs that Your Child Might be Spoiled.” One of the signs mentioned was that he or she would fail to respond upon being greeted. When I read this, I shifted uneasily in my chair. Although he handles please and thank you beautifully, my seven year old son Connor will not even talk to his classmates when he is having a bad day. I know this hurts the other children, who go out of their way to make him feel comfortable in his general education classroom.

Later that day, when I picked Connor up from school, I was chatting with another mom. My son walked up to us, and she said, “Hi Connor!” My son promptly turned his back on her. This was the last straw.

Autism is no excuse for rudeness, and I knew we would have to do something to change Connor’s behavior, and pronto. It was also humbling to realize that my husband and I had been overcompensating for Connor’s autism, and we had been unintentionally spoiling him by letting him get away with bad manners. (Ack! These facing-the-music moments in parenting are not pleasant, and I was determined to redeem myself).

At first, I tried talking with him, “Honey, you need to say hello to Mrs. Worth.” He looked hard at me for a moment and then declared, “I don’t say hello to strangers.” I tried a different path. “But, sweetheart, she is my friend, it is okay to say hello.” More firmly now, he responded, “I don’t say hello to your friends.” It was clearly time to change context.

I then asked, “You say hello to your classmates, right?”

“I only say hi to my friends in my classroom.”

For those of you who know how literal a child on the spectrum can be, Connor meant EXACTLY what he was saying. He prefers to talk in the classroom, but not in hallways, and only sometimes on the playground. Oh, this was worse than I thought!

When I got home, I pulled out a training video that had been recently returned to me by our son’s resource teacher. I had given it to her to review, and she had been playing it for all of her students over the past four months. The video series, Model Me Kids, features real children in real settings to teach social skills. I had purchased two of the videos, Time for a Playdate and Time for School as a starter set because Connor LOVED the video clips that Model Me Kids had provided online as a try-before-you-buy strategy. It was a wonderful courtesy, and prevented me from wasting more money on yet another educational tool that Connor would have no interest in watching.

I located the section in the Back to School video about Saying Hello. And then I remembered that when I played the video the first time, that Connor had connected to the characters in the video, but had turned his head away from the saying hello part. Clearly this was something that was difficult for him. Perhaps he was shy; perhaps he saw a greeting as an intrusion into his personal space. Who knows? But it was time to address the problem, and although the videos were able to teach him a number of training skills, this particular task was going to need a bit more oomph.

So I went back to the Model Me Kids website, and found that a teacher and a student training manual were also available as accompaniments to the videos. (Sections of these luckily were also posted online, so I could try them before I decided to order the set, which I did). The training manual included discussion questions, such as “how do you feel when someone says hello to you”? Connor responded “I feel happy!” Then we talked about how he felt when he said hi to someone and they didn’t say hi back. He read the proper response off the manual, “Hurt feelings.” We also went over the student manual, which talked about the rules of saying hello, such as turning to face the person who had issued the greeting, making eye contact and saying hello.

But Connor still looked a little dubious, so we decided to role play. I asked him to pretend he was my friend. I would pretend to Connor. And so we began. He said, “hi!” very brightly and friendly. I, as pretend Connor, walked right past him. He was flummoxed. “Hi!” he said again, and I walked by again without responding. “Hi!”” Hi!” he repeated. And I continued to ignore him. He was looking a little worried by now. After his fourth hi, I turned to him, smiled and said hello with a big smile. Connor got the message.

We watched the Back to school video again, and when it came to the Say Hello part, Connor repeated each instruction.

The next day, Connor began to say hello back.

Safety for Children on the Autism Spectrum

Friday, March 13th, 2009

Keeping children with autism safe is a difficult, but not insurmountable challenge, which is why Autism is Not the Boss is issuing a call to all parents to supply tips and success stories for how to teach safety skills.  As thought starters, please check out our blogs on elopement issues, home safety drills and ’stranger danger.’ 

For more on this topic, please also check out Dennis Debbaudt’s Autism Risk and Safety Management website at http://www.autismriskmanagement.com/. With over ten years of experience presenting autism related law enforcement training sessions, Dennis’s training materials are in use by law enforcement agencies in the U.S., Canada and United Kingdom.

Elopement

My son reacts to certain stimuli like a car alarm in a thunderstorm.  Given the right trigger, he will take off running in full panic mode, usually straight into a busy street, and he will not stop, nor pause, nor look at anything nor at anyone while he is in flight.  The official term for this type of behavior is ‘elopement,’ and it seems to be triggered by some type of sensory overload. It was much worse when Connor was younger, and other than hyper-vigilance on my part, there wasn’t much I could do about it. 

But Connor still runs, and now he’s gotten so fast that it’s difficult to catch him.  After one too many jaunts into traffic, I was determined to do something about it. I grabbed my fleeing son and took him to a running track adjacent to the school, where I told him firmly, “You can run here, but not in the street. Now run! ” And he did, for three laps until whatever was bothering him worked his way out. I ran, too, fueled by adrenaline from my near miss with a semi during the rescue.

We also went over rules.  Connor can’t help his flight response, but he did acknowlege that when I yell  a single “STOP” he’ll do his best to pause until I could reach him.  He also agreed to run toward a playground instead of a street or parking lot. Finally, we are trying to mitigate Connor’s urge to flee by encouraging deep breathing and other self-calming strategies.

 

Stranger Danger

Stranger Danger isn’t an issue for us as my son uses the “Don’t Talk to Strangers” rule completely and without exception!  We’ve had to have a few talks about why it is both appropriate and important to talk to police officers and firemen.

Stuff that works - for us

We  don’t assume these products will work for everyone–that’s why we ended the title with the parenthetical (for us). But if you are looking for new things to try, please read the accompanying blogs to view our experiences with these products. 

Mama, Don’t Cry for Me a song written by Mandy Harker and Sharee Wolfley and Sung by Kalii Palmer. Listen when you really, really need the strength to keep believing that everything will be okay.

 Model Me Kids

Model Me Kids® has broken the code on tools to teach social skills to children on the autism spectrum.

Click here for our success story and a full product review.

 

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L. Mae Wilkinson:

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